Lipedema Ontario
At Lipedema Ontario, we believe that collaboration is the key to change. Formed in 2023, we are working hard to be the voice of the many people living with lipedema in this province.
With a population of nearly 7,900,000 females in Ontario, and an estimated 11% of them with lipedema, that means over 860,000 people in this province may need support.
We are intent on educating health professionals, government and the public about lipedema, its symptoms, and its challenges to improve diagnosis and treatment.
Home to our country’s capital, we aim to make our voice resonate with those who can help make change happen.
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Lipedema Ontario
Board of Directors
Holly Hedd
President & Director of Communications
Holly Hedd is a communications specialist with more than 25 years of experience in government, private, and not-for-profits. She has worked in all forms of media, including newspapers, radio, television, and online. In addition to holding the position of President and Director of Communications for Lipedema Ontario, she is the Director of Communications for Lipedema Canada. Diagnosed with lipedema at the start of 2022, an extensive search led Holly to recognize an enormous gap in Canada for acknowledgement and support for those with lipedema. Holly has been devoted to learning about the condition to raise awareness and bring change to Canada’s health care system. When not working toward the cause, she can be found creating in some form or another, including writing stories, painting, building, and garden design.
Priti Srivastava
Vice President
Priti Srivastava, a seasoned software professional, brings nearly three decades of corporate experience in both government and private sectors. Her journey also encompasses roles as a dedicated wife and mother, entrepreneur, vocalist, educator, and dynamic speaker. Priti’s battle with Lipedema began during her pregnancies 25 years ago but remained undiagnosed. Menopause exacerbated her condition, pushing her quickly to late Stage 2. In 2023, Priti chanced upon the condition and armed with research and determination, she self-diagnosed and took charge of her health. She flew to Europe for 2 of 3 surgeries, investing completely in her well-being. Priti's dedication goes beyond her personal healing. As she recovers and prepares for her final surgery later this year, she is fully committed to raising awareness about Lipedema in Canada and providing resources to fellow Canadians affected by the condition. Join Priti on her transformative journey as she champions for change within Canada’s healthcare system as Vice-President of Lipedema Ontario.
Sonia Gianvito
Secretary
Sonia’s journey is a testament to her resilience and growth. Starting in the retail sector, she developed her servant leadership skills by listening, adapting to feedback, and empowering others. Drawing on her customer service skills and retail background, she transitioned to a support role as an Administrative Assistant in finance and banking. Sonia holds the position of Secretary for Lipedema Ontario. In 2023, she took a proactive step to learn more about her autoimmune disease, Hashimoto’s Thyroiditis and discovered a link between autoimmune diseases and Lipedema. This discovery sparked a journey of self-discovery, acceptance, and healing. Sonia’s passion for advocating for mental health, wellness, and inclusivity is evident in her commitment to making a difference by promoting Lipedema awareness and education. Sonia enjoys creating healthy meals, taking nature walks and playing euchre with her family. She aspires to inspire others on their paths of self-discovery.
Helene Papadolias
Treasurer
Helene Papadolias is a dedicated consultant with a passion for both finance and baking. By day, she manages Group Retirement Plans (Pensions), and by night (and weekends), she is an enthusiastic baker - so much so that she joined the George Brown Continuing Education Baking Arts program to hone her skills. In 2022, Helene discovered she had Lipedema and has since focused on conservative weight management methods. Her journey has been a slow one with lots of emotions and tears. There is a long road ahead, but she continues to gain knowledge and make progress. Now, part of the Lipedema Ontario board as Treasurer, she is advocating for awareness and empowerment, one woman at a time.
Denise Woodley
Director of Technology and Innovation
Denise is a retired information technology professional with a 30-year career specializing in supporting students with special needs. Her extensive experience in IT, combined with her compassionate approach, has undoubtedly made a lasting impact on countless students, and serves her well as the Director of Technology and Innovation for Lipedema Ontario. Outside of her professional life, Denise treasures the time she spends with her five grandchildren, who bring immense joy to her life. She is an avid gardener, a talented seamstress, enjoys the art of furniture refinishing and reading a good book. Her creative pursuits also include photography and she has a passion for travel. In 2017, Denise was diagnosed with lipedema, a condition that profoundly changed her perspective and goals. This diagnosis ignited a new passion within her to make a difference for others affected by lipedema. Denise is now dedicated to raising awareness about the condition, advocating for better understanding and support, and empowering those who, like her, live with lipedema.
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Changing lives for those with lipedema
Hello friends, supporters, and compassionate strangers! We are Lipedema Ontario, a not-for-profit organization dedicated to raising awareness, providing support, and improving the lives of those affected by lipedema in Canada. Today, we need your help to continue our vital work and bring hope to countless people suffering from this underdiagnosed and misunderstood condition.
Get in Touch
- Holly Hedd - President & Director of Communications
- Priti Srivastava - Vice President
- Helene Papadolias - Treasurer
- Sonia Gianvito - Secretary
- Denise Woodley - Director of Technology and Innovation
Online Support Group
Join us in our private online support group on Facebook for those dealing with lipedema challenges. We'd love to offer our support and help you through this journey!
Resources
Need a little help teaching others about lipedema? We've got you covered. Check our resources to help start those conversations.
What is Lipedema?
Come explore the world of lipedema with us! Discover all the information you need about this condition, including its various stages and types.
Meet the Team
Lipedema Canada was founded by individuals, just like you. Together, we can open minds and change lives!
